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addition to Friends in Time, there are a variety of resources that may
be of use to people with neuromuscular diseases and their families and
caregivers.
Local
Resources
Friends
in Time and other local groups provide support
groups for people with MS and ALS and their caregivers.
For
local transportation contact:
Mini
Ride for the Mobility Impaired
601
Yale Blvd SE
Albuquerque,
NM 87106
Phone
505.764.6165
TTY
505.764.8920
New
Mexico Disability News Network
www.nmdnn.com
Stories
and information for and from people with disabilities here in New Mexico.
One of the Friends in Time program participants, Beverly Branham, shares
her story through a video testimony.
Internet
Sites on ALS
(Lou Gehrig’s Disease)
ADELA
(Association Espanola de Esclerosis Lateral Amiotrofica)
Spanish-language association for people dealing with ALS
ALSA
(The ALS Association)
An advocacy group.
The
ALS Society of Canada
A national voluntary organization, supporting research towards a cure,
and supporting ALS partners in providing quality care for persons affected
with ALS.
Doctor's
Guide to ALS (Lou Gehrig's disease)
A guide to ALS-related information and resources
likely to be of interest to medical professionals and/or patients.
International
Alliance of ALS/MND Associations
The International Alliance of ALS/MND Associations
was founded in November 1992 to provide a forum for support and the exchange
of information between the worldwide associations. More than 50 national
patient support and advocacy groups from over 40 countries worldwide have
joined together to form the International Alliance.
International
Center for Disability Resources on the Internet
A database of support services and informative sites.
World
Federation of Neurology
This web site is sponsored by the World Federation
of Neurology Research Group on Motor Neuron Diseases to link researchers
and clinicians worldwide with the goal of finding effective treatment
and a cure for ALS.
Join
an ALS Newsgroup sci.med.diseases.als
Internet
Sites on MS
Andy's
Mega List of Links
Andy Barnes' gigantic linklist.
Computer
Literate Advocates for Multiple Sclerosis
CLAMS is comprised of people who are provisionally
diagnosed or diagnosed with Multiple Sclerosis (MS). It is Computer Information
and Communication for People with MS, by People with MS.
Consortium
of Multiple Sclerosis Centers
Looking for locations of MS centers in all regions of the US and Canada?
You'll find them here. This site includes quarterly reports which include:
news and information from CMSC centers, daily medical news updates, a
listing of new and ongoing clinical trials, and a link to the CMSC's online
journal.
International
Multiple Sclerosis Support Foundation
A large and useful nonprofit site.
MS
Active Source
MS Activesource.com is your resource for news, information, and disease
management for all people who are touched by Multiple Sclerosis.
MS
Crossroads
Links about MS-stuff, Support, MS research,
researchers, Medline, Abstracts (updated), MS medication, speculation,
medical stuff, computer software for disabled.
National
Multiple Sclerosis Society
This web site has clearly written introductory material about MS symptoms,
diagnosis, prognosis, and treatment, as well as psychological challenges,
and includes lists of clinics affiliated with the society and of society
chapters throughout the US.
Understanding
Multiple Sclerosis
A very popular description from Pennsylvania Neurology Associates.
Join an MS Newsgroup Alt.Support.Mult-Sclerosis
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